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“I was thrilled to receive your breast cancer survivor kit. It literally made my day. The cookbook is fantastic, and the information provided will definitely help me during my survivorship journey. I keep my kit in the great tote bag and refer to it often. It is usually the first thing I look at if a question occurs to me. You all do wonderful work and this was so supportive to me. I will share it with other survivors as well as those beginning their journey.”
- Joanne, Baton Rouge, LA
In September 2011, Sharsheret received a three-year grant from the Centers for Disease Control and Prevention to develop a comprehensive survivorship program for young Jewish breast cancer survivors like Joanne. Three years later, after distributing more than 1,300 survivorship kits, conducting nearly 750 care plan navigation sessions, and hosting 5 national teleconferences, Sharsheret’s survivorship program, Thriving Again, is doing just that – thriving.
Throughout the process of developing and implementing Thriving Again, Sharsheret conducted a series of evaluations on the needs and concerns of young Jewish breast cancer survivors. Sharsheret clinicians engaged in a comprehensive review of the literature regarding young adult cancer survivors and relevant support programs, surveyed more than 1,400 young breast cancer survivors to better understand their unique and unmet needs, and conducted four national focus groups of breast cancer survivors to collect feedback and identify priority concerns. Sharsheret presented this program development model and findings from the Thriving Again program at healthcare conferences across the country, including the Centers for Disease Control and Prevention Business Meeting and the Academy of Oncology Nurse Navigators Annual Conference, where Sharsheret was presented with an award for our poster presentation in the “Original Research on Survivorship Programs” category. Through sharing our program model and data, Sharsheret advances survivorship care for all groups, and informs the development of new programs for survivors of breast and other cancers.
Looking toward the future, Sharsheret now offers consulting services and co-branding opportunities for healthcare professionals and those at medical centers nationwide who wish to develop similar culturally-relevant support programs for cancer survivors, and continues to provide survivorship kits and navigation services for the women of Sharsheret, like Joanne, who seek survivorship information and support.
To learn more about Sharsheret’s consulting and co-branding services, contact Support Program Coordinator Sharon Stahl, LMSW or call 866.474.2774.
Sharsheret is proud to have been awarded a grant from the Centers for Disease Control and Prevention to develop and implement our program for young Jewish breast cancer survivors, Thriving Again®. This grant was part of a larger CDC initiative to address breast cancer in young women. Since 2011, Sharsheret’s Founder and Executive Director, Rochelle Shoretz, has served on the Federal Advisory Committee on Breast Cancer in Young Women, along with representatives from other major breast cancer organizations, supporting the development of national resources and awareness of the Jewish population’s unique role in the conversation about breast cancer.
The CDC recently announced the launch of Know: BRCA, an initiative and web-based resource designed to promote BRCA gene mutation awareness in young women. 1 in 40 Ashkenazi Jews carries a BRCA gene mutation, compared to 1 in 345 in the general population, making Jewish families 10 times more likely to develop hereditary breast cancer, ovarian cancer, and related cancers. This CDC initiative brings Sharsheret another step closer to achieving our goals of enhancing awareness about the impact of BRCA gene mutations, the elevated risk of developing hereditary cancer among Jewish families, and the need for tailored support for the more than 250,000 women under 40 living with breast cancer in the United States today.
If you have a family history of cancer, or a BRCA gene mutation, call Sharsheret at 866.474.2774 or email email@example.com to speak with a member of our clinical staff and join our Genetics for Life® program.
An article published yesterday in the Wall Street Journal highlights cancer survivorship care programs, not only as an emerging trend in the medical field, but as an essential accreditation standard for U.S. cancer centers by 2015, according to the Commission on Cancer. With an increase of early detection and advances in treatment options, more and more people are living longer after a cancer diagnosis. As noted in the article, the National Cancer Institute indicates that there will be 18 million cancer survivors living in the United States by 2022.
This article reinforces our notion that women need support throughout their cancer journey, from before diagnosis, during treatment, and through survivorship. Recognizing the need for the development of survivorship care programs, the Centers for Disease Control and Prevention awarded Sharsheret a grant in 2011 to launch Thriving Again, a comprehensive survivorship program for young Jewish breast cancer survivors. We were able to draw from over a decade of our experience working with young Jewish women facing breast cancer and develop a culturally-appropriate program that touches upon the entire spectrum of issues and concerns that cancer survivors can face, even years after treatment has ended. Sharsheret’s survivorship program offers free survivorship kits which address both the medical and psychosocial needs of cancer survivors through informational resources, and action-based tools such as a healthy living cookbook and fitness DVD.
The program also offers a customized survivorship care plan. In addition to the survivorship kit, members of our clinical staff work directly with each survivor to develop their own personalized survivorship care plan. As indicated in the article, after months of treatment, many survivors can feel overwhelmed and isolated during their transition into survivorship. Sharsheret’s care plans, designed to be completed with a health care professional, can be used as a tool to help organize each woman’s survivorship journey and allows them to focus on living a healthy, fulfilling life.
© 2014 Sharsheret: Your Jewish Community Facing Breast Cancer
Sharsheret is a 501(c)(3) charitable organization ID# 13-4198529
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